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The Haemophilia Society is the only UK-wide charity for all people affected by genetic bleeding disorders.

We do not store credit card details nor do we share customer details with any 3rd parties.

Welcome to The Haemophilia Society website. If you continue to browse and use this website, you are agreeing to comply with and be bound by the following terms and conditions of use, which together with our privacy policy govern The Haemophilia Society’s relationship with you in relation to this website. If you disagree with any part of these terms and conditions, please do not use our website.

Terms and conditions and privacy

Terms and conditions related to The Haemophilia Society website, and information on privacy, data protection and use of cookies.

The term ‘The Haemophilia Society’ or ‘us’ or ‘we’ refers to the owner of the website whose registered office is Willcox House, 140 – 148 Borough High Street, London SE1 1LB. Our registered charity number is 288260. The term ‘you’ refers to the user or viewer of our website.

Disclaimer – Information on WEBSITE-URL

We have taken every care to ensure that the information on our website is accurate and up to date. However, if you come across something you believe is inaccurate, please contact us –  The Haemophilia Society will make every endeavour to deliver services as described on this website. However, changes may be necessary at times and we reserve the right to make changes to those services.  Please note that The Haemophilia Society does not take responsibility for any damage or loss caused by any inaccuracies on this website.

Copyright and trademark

Unless stated otherwise, The Haemophilai Society maintains copyright on the information published on this site. Logos, names and images used on this website are the proprietary marks of The Haemophilia Society. You are prohibited by law to reproduce them.

Terms of use

When you access this website, you are agreeing to do so only for your information and not for commercial or public use; and to use this site only for lawful and proper purposes.  You are also agreeing that you will not copy, store in any medium, distribute, transmit, modify or show in public any part of the website without the prior written permission of The Haemophilia Society.

You are prohibited from using this website to post or transmit any unlawful, defamatory, obscene, offensive or scandalous material. This includes material that constitutes or encourages conduct that would be considered a criminal offence, likely to give rise to civil liability or otherwise violates any law. The Haemophilia Society reserves the right to co-operate with any law enforcement authorities or court order requesting or directing us to disclose the identity of anyone posting any such information or materials on this website.

What The Haemophilia Society does with your data

At The Haemophilia Society we take your right to privacy very seriously. Any personal information will be treated in accordance with the Data Protection Act 1998.

Collection of information

The Haemophilia Society is the sole owner of the information submitted by you to us in any way. This may include when ordering publications or merchandise, making a donation, registering for an event or a service, contacting our helpline, signing up to newsletters, completing surveys, filling in forms, or any other ways you contact us. We may also collect general information about the use of our website.

How will we use personal information?

We will use your information to provide you with information, products or services that you request from us, to respond to your feedback, to develop and improve our services, or to further our charitable aims, including fundraising activities.  We may also tell you about products or services that we feel may interest you – where you have agreed to be contacted for these purposes. If you do not wish to receive this information please contact us by email: or by phone 020 7939 0780.

We may use your information to compile anonymous statistics and research in the course of our work, to help us ensure we are meeting our aims, and improve what we do.

We may share your information with carefully chosen suppliers or third parties in order to provide you with further information on the charity’s work and activities. For example, we will provide our fulfilment house with relevant details in order to fulfil these orders. They will keep this information confidential and won’t sell it on to other parties. We may also need to disclose your information if required to do so by law. However, we will never sell or rent personally identifiable information that you have provided to us to third parties.

How do we protect personal information?

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date. We use secure systems to store information. And we keep it only for as long as is necessary for the purposes for which it was intended, or for as long as we are legally required to keep it.  Please be aware that email is not recognised as a secure means of communication. If you choose to send private information to us by email, you do this at your own risk.

Your consent

By providing us with your personal data, you agree to the collection and use of any information you provide, in accordance with the above purposes and this privacy statement.


Any information and credit card details you send to us using our donation pages are encrypted, so cannot be intercepted over the Internet. We do not store credit card details, and bank details provided to us in setting up Direct Debits. This information is held with PayPal, a third party agency using a secure system to administer donations made to The Haemophilia Society.

Analysing how people use our website

This website uses Google Analytics, which is provided by Google, to look at how people use the site. Google Analytics uses “cookies”, which are text files placed on your computer. They help us understand people’s interests and preferences, to make sure the website is as easy to use as possible.  We only use certain essential cookies which are needed to enable the provision of our website’s core services.

The main use of cookies for The Haemophilia Society is:

Counting the number of visitors to our website and seeing the journeys visitors make as they move around it. This information helps us improve the layout of our website and make information quicker and easier for you to find. Measuring how many people are using services, so they can be made easier to use and there’s enough capacity to ensure they are fast. The information produced by the cookie about how you use the website (including your IP address) will be transmitted to and stored by Google on servers in the United States.

Google will use this information to compile reports on website activity for us, and to provide other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not link your IP address with any other information held by Google. You may refuse the use of cookies by selecting the appropriate settings on your browser. However, please be aware that if you do this, the website may not work as well as it should. By using this website, you consent to the processing of data about you by Google in the manner and for the purposes we have described above.


Our websites may include links to websites run by other organisations. The Haemophilia Society does not take responsibility for the content of external sites that we link to. Linking to these sites does not necessarily imply that we endorse them. They are provided in good faith and as another avenue of information that you may find useful.

Accessing your information

You have the right to ask for a copy of the information we hold about you (for which we may charge a small fee), and to have any inaccuracies in your information corrected.

We may revise this privacy policy from time to time. Any change will take effect once the revised privacy policy is available on this website. Please check the policy regularly for any changes.
If you have any questions about this privacy policy, please contact us:

By email:, by phone 020 7939 0780, or by post The Haemophilia Society, Willcox House, 140 – 148 Borough High Street, London. SE1 1LBouse, 140 – 148 Borough High Street, London. SAE1